The Precision Medicine Initiative Working Group of the Advisory Committee to the NIH Director is hosting a public workshop at Intel’s HQ Campus in Santa Clara (it’s free to join the event on Livestream here) to discuss the scientific, methodological and practical considerations to inform the incorporation of mobile and personal technologies in the national research cohort of one million or more volunteers.
Key agenda discussions will include:
Potential benefits and barriers of employing mobile technologies in a large cohort study using the experiences of current smaller cohort studies that have incorporated these technologies. What is the desired functionality for a national research cohort mobile health app that would facilitate participant engagement and retention? What are some examples of the status of mobile technologies to measure a wide range of PMI cohort relevant variables (e.g. physiological, behavioral, and environmental)? What are the social and technical challenges that will be faced in using these technologies in a large cohort (including sampling bias/diversity, privacy/security, feasibility/validity, and data management/integration)? What are some practical uses of mobile technologies based on relevant national research cohort use cases? What are examples where the cohort might be used as a test bed for new and emerging technologies that will advance precision medicine?
Keynote speakers will include:
Greg Armstrong MD, Epidemiology and Cancer Control, St Jude Children’s Research Hospital
Rhoda Au PhD, Prof of Neurology at Boston University and Director of Neuropsychology, Framingham Heart Study
Gary Bennett PhD, Professor at Duke University and Co-Founder, Scale Down
Andrew Campbell PhD, Prof of Computer Science, Dartmouth College
Jorge Chavarro MD, Professor of Nutrition and Epidemiology, Harvard
Francis Collins MD PhD, Director, NIH
Josh Denny MD MS, Assoc Prof of Medicine & Biomedical Informatics, Vanderbilt University
Eric Dishman PhD, General Manager of Health & Life Sciences, Intel Corp
Ray Dorsey MD MBA, Director at the Centre for Human Experimental Therapeutics, University of Rochester
Emre Ertin PhD, Research Associate Professor, Ohio State University
Ram Fish MBA, VP mHealth, Samsung
Maribeth Gandy Coleman PhD, Director of Interactive Media Tech Centre, Georgia Tech
Esteban Gonzalez Burchard MD MPH, School of Pharmacy, UCSF
David Gustafson PhD, Centre for Health Enhancement, University of Wisconsin-Madison
Kathy Hudson PhD, Deputy Director, NIH
Anand Iyer PhD, Chief Data Science Officer, WellDoc
Michael Jerrett PhD, Fielding School of Public Health, UCLA
Andrew Kasarskis PhD, Vice Chairman Department of Genetics and Genomic Sciences, Mount Sinai
Jeff Kaye MD, Director of the Centre for Aging & Technology, OHSU
Sachin Kheterpal MD MBA, President of the Precision Medicine Initiative, University of Michigan
Deborah Kilpatrick PhD, CEO, Evidation Health
David Kotz PhD, Founder, True Health Coalition/GLiMMER Initiative
Anmol Madan PhD, CEO, Ginger.io
Spero Manson PhD, Assoc Dean of Research, University of Colorado Denver
Jessica Mega MD MPH, Assoc Prof of Medicine at Brigham and Women’s Hospital & Google Life Sciences
Kevin Patrick MD MS, Professor of Family & Preventive Medicine, UCSD
Bray Patrick-Lake MFS, Clinical Trials Transformation Initiative, Duke University
Sue Siegel, CEO at GE Ventures & Healthymagination at GE
Kathy Sigona, Health eHeart Study Participant & Alliance Steering Committee Member
Ida Sim MD PhD, Professor at UCSF & coFounder at Open mHealth
Bonnie Spring PhD, Institute for Public Health and Medicine, Northwestern University
Donna Spruijt-Metz PhD, Assoc Prof Preventive Medicine, USC
Mani Srivastava PhD MS, Professor, UCLA
Arthur Stone PhD, Prof of Psychology, University of Southern California
Event registration is now closed but you can join the livestream by simply clicking here and there’s also set to be some lively discussions on twitter #PMINetwork
Related: Comprehensive listing of mHealth events being held in 2015.