Privacy & Patient access to Healthcare Record information

Imagine how Patients would cross examine healthcare provider organisations that don’t provide Patients with access to Health Records:

“(PATIENT) Would you be comfortable sharing with me the name of the conditions you have diagnosed me with and the results and treatments you have provided to me?

(HEALTHCARE PROVIDER) …um… er no.

(PATIENT) If you shared my info with anyone else or messaged any colleagues would you share with me the name of these people/companies?

(HEALTHCARE PROVIDER) …no I would choose not to do that.

(PATIENT) I think that might be what this is all about. Your right to withhold information relating to my care. The limits of your rights and how much I’m having to give away in order to ‘get healthcare services that I am ultimately paying for’. The question I want answered is what information is the healthcare system collecting on me, who are they sending it to and whether they’ve ever asked me in advance for my permission to do that? Is that a fair thing for a user of healthcare services to expect?”

The NHS doesn’t trust Patients with access to their own Medical Records but has provided strangers with access to the records of 26 Million Patients… (March 2018)

Apple’s Health Records App: A Ripple or a Roar? (March 2018)

Cancer Charities: experts in personal data sharing just not yet in ways that help us better understand Cancer Care (April 2017)

Google apologises for paying ad revenue to rape apologists & racists but says nothing to the 1.6 Million NHS Patients who didn’t consent to sharing their Hospital records (March 2017)

With your access to the internet & my medical degree imagine how we could work together? (Dec 2015)

Dr Eric Topol’s “The Patient Will See You Now: The Future of Medicine is in Your Hands” now available (Jan 2015)

Has your Hospital replaced error prone paper based Observation Systems with mHealth Apps? (2014)

Of all the horrible things that happened the worse was the lack of access to information… (2013)